Sue is the founder and past Chair of the Board of the National Organisation for Fetal Alcohol Spectrum Disorders Australia (NOFASD Australia).
She has been caring and supporting her now adult daughter who has FASD for the past 37 years. Sue became acutely aware of FASD as she has advocated and supported her daughter through the challenges of FASD across the lifespan.
During her time on the Board of NOFASD Sue lobbied extensively on both a state and national level to raise awareness about FASD and was an invited member of, and reported to, various national and state government agencies in Australia, as a recognised parent authority in this area. In this voluntary role Sue also provided one-on-one support to many parents /carers and individuals living with FASD and also delivered FASD presentations/workshops to foster carers, teachers, drug and alcohol workers, disability workers, mental health workers, midwives and many other community organisations throughout Australia.
She has significant expertise and knowledge around the secondary conditions which develop for people who have FASD. Sue retired from NOFASD Australia in an official capacity in 2015 but continues to provide voluntary support to the organisation in various roles.